Most recent update: Sunday, April 29, 2018 - 14:56

You are here

ACP Venous Registry update

ACP PRO Venous Registry collects data on 19,000 patients

The ACP PRO Venous Registry has been developed specifically to serve the specialty and contribute to the science in a way that is meaningful to practitionesr, as well as for insurers and policy-makers

The American College of Phlebology (ACP) has provided an update on its PRO Venous Registry, which now contains more than 19,000 unique patients and 77,000 patient records from 99 physicians in 90 locations, which can be utilized to conduct meaningful, evidence-based research.

According to the ACP, as patient and payer needs continue to change, verifiable data in clinical practice is more important than ever. Understanding the scope of venous disease, the most effective treatment options and how those options affect quality of life for patients, improves care and patients’ lives, as well as allowing for engagement with payers, policy-makers and the public.

“There are tremendous pressures in our specialty – disease states that are unrecognized, patient outcomes are largely non-existent, and declining reimbursement for procedures,” said Dr Marlin Schul. “Additionally, the patient’s voice is critical. When captured, this allows us to identify both the quality of life and economic benefit as perceived by our patients.”

The ACP PRO Venous Registry is a robust database which collects both physician and patient reported outcome (PRO) data through the use of ACP certified EHR systems. This makes the registry an easily use research and bench-marking tool, and offers a number of opportunities for providers to participate and specifically allow patients to share their stories through generic and disease specific quality of life scales. It is also the only registry dedicated specifically to the breadth of venous disease, designed by those practicing in the field.

With more than 600 data fields covering the full spectrum of deep and superficial venous disease, the ACP PRO Venous Registry represents the most comprehensive picture of vein care through its collection of both physician and patient reported data. In addition, the system was designed to grow as science advances, so an infinite number of new diagnoses, procedures and treatments can be added quickly and easily.

The ACP PRO Venous Registry uses the data collected from an ACP certified EHR, allowing for a simple, straightforward process to send your secure, HIPAA compliant data.

 The ACP PRO Venous Registry has been developed specifically to serve the specialty and contribute to the science in a way that is meaningful to practitionesr, as well as for insurers and policy-makers. A registry remains the most powerful tool to address the epidemiology of a disease state, and is the answer to expensive randomised trials. The ACP PRO Venous Registry captures the real-world clinical data and outcomes of our heterogenetic population. This represents “Practice Based Research” or practical research where data reaches our members more quickly than otherwise possible, and provides them with valuable outcome data that can be used to market their practice and potentially negotiate better payer contracts.

Led by Drs. Marlin Schul and Willy Chi, the ACP PRO Venous Registry is the only dedicated venous research database populated with data from participating practice electronic medical records (EMR) systems. While eliminating redundant manual entry, the registry also provides more than 600 data fields specific to deep and superficial venous disease. The registry represents the most comprehensive picture of vein care through the collection of both physician and patient reported data. As science advances, the system will grow without limitations, allowing an infinite number of new diagnoses, procedures and treatments to be added quickly and easily for future use.

ACP PRO Venous Registry data provides investigators and practitioners valuable insight into diagnostic and treatment efficacy through:

• Treatment outcome benchmarks

• Venous disease patient demographics

• Quality of Life (QoL) indicators based on treatment options

• Accurate and comprehensive vein care statistics

• Commonalities in treatment protocols

Dr. Chi is the first to utilize the registry resources with a study entitled, “Health Related Quality of Life Questionnaire in Compression Therapy and Epidemiological Pattern of Registry Participants”. He presented his findings at the ACP Annual Congress in November 2017. The study will be published in Phlebology Journal later in 2017.

“If you are serious about veins and wish to continue to be reimbursed for your work, you should seriously consider registry participation that will allow you to not only easily capture your data, but will also allow patient involvement,” added Dr Schul.

For more about the ACP PRO Venous Registry, please visit www.phlebology.org/registry. You can also view the registry dashboard at www.veinstats.org.